Friday, May 28, 2010

Maybe?

So it seems like Spencer might get to come home the second week of June. Discharge Services came to talk to me. They told me that the hospital's service comes to deliver everything. They will deliver his oxygen, and the supplies that go with it and then anything he might need for his g-tube care...except the cleaning supplies like q-tips. If Spencer does come home on oxygen, we will get a portable tank, tanks for around the house, and a refill system. The portable tank is super tiny and in a backpack. Pretty awesome. We will also be able to go visit my husband's parents since the tanks for the weekend are small enough to fit in my VW Beetle.
His sleep study is on June 4th. We'll know the results most likely on Monday, and then we can probably get him home that week. We're trying to not get our hopes up, but it seems like he'll get to come home. His breathing is so much better. He is such a happier kid too. He has been sleeping so good! I think they will do a test to see how long he can tolerate room air, so then we will know about how much oxygen he needs and such at home.
If he doesn't improve in sleep study, then he'll most likely be getting a jaw distraction. We're really hoping it won't come to it. He wouldn't tolerate it well. He has been cranky for two days because he got his shots. I don't think he would be able to use his binky for a while, which is his crutch.

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