Friday, August 20, 2010

Spencer the amazing weight gaining baby

We had an emergency cast removal on Monday. Spencer was sick last week and lost nearly a pound. He was casted on the last day of his illness. I noticed his cast was a little tight on Sunday night, but didn't think anything of it. We had an early morning appointment at his urologist and the doc said he was really swollen down there. Turns out his cast was way too tight and he had some swelling. They called over to ortho and Spencer got to have his cast soaked off in one of those pink little tubs. Luckily he's still tiny and fit. Turns out he gained his pound he lost back over the weekend.

We had to have his cast soaked off in the casting room. Everyone who walked by smiled at him, shocked to see a baby soaking in a tub. He didn't seem concerned when he heard the first saw that was kind of far away, but then the saw sound kept getting closer. He seemed mildy concerned. It was pretty adorable. One of the cast techs got me some fresh water and soap, and is was so awesome to be able to wash his leg properly for the first time in a month. Little acts of kindness...

He was recasted in nearly the same position. Apparently you can't position the foot too much too soon. Good news is that this was his last weekly cast. Technically it only took four casts. He gets his tendon cut next friday morning!

Thursday, August 12, 2010

Here we go.

Sorry it took so long to post, dealing with an impending divorce. That's a whole another story.

Anyhow, Spencer has a couple of generic diagnostic terms. He has Pierre Robin Sequence and the Distal Arthgryposis diagnosis was confirmed. He'll hopefully outgrow the DA, but it could point to ODHO syndrome. They tested him for a couple of things, but are still scratching their heads. They said the more defects usually means more developmental delays, so we'll see. He's trying really had to sit up on his own, and is constantly smiling.

He gets his third cast tomorrow. I know I set this blog up to document his clubfoot treatments, but honestly, the casting has been pretty painless even with him being older. I'm just worried about when he has to go into the bar. He is a little cranky the first night of a new cast, but we give him some tylenol to help him rest, and he's good.