Friday, January 28, 2011

So today we picked out Spencer's hearing aids. His hearing is way worst than I thought. It's fun yet depressing to figure out what he can hear and what he can't. It depresses me that I spent all that time talking his head off in the car, and he probably didn't hear any of it. His right ear is worst than his left, but his left is moderate hearing loss and the right is severe.

But anyhow....We picked out blue hearing aids with blue backs. He is getting digital ones since he is so little. We should have them in around three weeks.

Tuesday, January 18, 2011

Hearing Aids

Well, the hearing test results were bad. We're getting hearing aids. Most like mild to moderate hearing loss. One test had mild as and result and the other severe. I mourned for a few minutes, and then realized that it's just one more thing- not the end of the world. Is it irony or coincidence that a musician's son has a hearing impairment?

I have to schedule an appointment with audiology for a hearing aid fitting. They say kids this small do really well. As for now, he seems to be pretty amazed at his toys. Dr. Schott said that the fluid in his ears was like putty.

Monday, January 17, 2011

Ignorance is Bliss.

Spencer had a tear duct surgery on the 13th, and he is having tubes put in his ears tomorrow. The last surgery was supposed to take twenty minutes, but took over an hour. It was called a lacrimal duct probing- meaning he had tubes placed in his tear ducts. Apparently they were a mess, which is what took so long, but he is now anatomically correct. Now hopefully it worked permanently. The ear tubes are being placed because he has narrow ear canals and has pretty much been on antibiotics for the majority of the past three months.

Good news for a change- he doesn't need glasses...yet! He is borderline!

He is making great gains in his physical development. He is starting to figure out sitting up a lot more. We're pretty optimistic he will be sitting independently by his first birthday- two months! He is rolling over- sometimes he needs a little help.

Yesterday I had him sitting in from of a toy that he hadn't played with in a couple of weeks. He attacked the toy and started turning all the nobs and stuff- something he hasn't done before. Every day this little boy does something that amazes me.

I'm super worried about his oxygen levels. He has been dropping significantly at night. ENT told us to put him back on O2 at night and told us to get him into the pulmonoligst asap. He has an appointment coming up soon- but I'm almost afraid to call to get the appointment sooner. I shouldn't be procrastinating, but isn't ignorance bliss? I'm convinced something is going on with his lungs or heart. I can't handle major surgery. Little operations here and there get me upset, but I deal. I can't deal with anything with "open" in the title.

Monday, January 3, 2011

A Year in Review

So 2010 was the hardest year of my life. First we were told that we would have a baby that would surely die. Then we were told we wouldn't. Then Spencer came into the world and still had to struggle. My marriage ended. My husband was destroyed by all the stress of having a baby in the hospital for three months.
But I'm lucky to have Spencer. Hopefully my husband will come back to us from what he calls the grave.
I gained confidence that I never knew I had in me, while my husband retreated in himself. It's amazing how two people so in love can react completely differently about the same thing. I swam while he sank, and by the time I realized it it was too late.
But at least we can agree we have the most beautiful, perfect child that has ever existed.