Today

Today in a nutshell:

Met with our new pulmnologist today.  I really like him.  He is one of the sleep center minions, which is exactly what we needed on our team.  Spencer has been having huge issues with sleep lately, and the new doc assured me that we were doing everything by the book.  He is consulting with endocrinology to see if Spence can have melatonin, if not we may be doing Ambien.  I hate the idea of medicating him, but at this point Spencer and I are both miserable.  He also wants Spencer to do a pulse ox test.  If he holds his own, which he has passed this test in the past, no more sleep studies and we can get the god forsaken oxygen equipment out of the house!

We then had a renal ultrasound.  Spencer was a nightmare during the test, although Elmo on TV seemed to help him calm down a tad.  The good news is that the peliminary came back clean.  No damange to the kidneys.  Dr. Alam may have something different to say, but so far I'm pretty pleased with the results.

We then met with Dr. Tamai.  Spencer has been having a few issues with his left leg bowing and the foot trying to turn in a bit.  We have to do exercises with him to keep it from tightening up.  Sometimes after spinal surgery kids start to get tight in the tendon.  If he gets too tight we will have to do another tentonomy and re cast...which would majorly blow.  But so far he is pretty optimistic. 

Our last appointment was with allergy.  We are allowed to try to start doing some eggs in bake goods and see how he processes it.


I forgot to mention, on the 9th Spencer said I love you for the first time:)  Of course it was all in Spencer-ese, but he said 3 distinct words right after I said I love you.