It's over

Spencer's cleft palate repair was today. There was a minor complication, but the plastic surgeon was able to get the palate closed beautifully. The hypospadius repair didn't happen and now Spencer's penis is the center of discussion again. They are worried size again, but "he's a little guy." I was also told by his urologist that "We we're going to be seeing a lot of each other." Ughhh. At least the kid got fucking circumcised....finally! It really feels like once we see an end to all the surgery, more and more get added onto it. Just to get his testes descended it's going to take two separate surgeries. Plus we have his ptosis repair (one now, one at age 7), possibly heart surgery, more ear tubes, eye tube removal, and possible tear duct reconstrucion.

Things that have gone right today:
Spencer had a seemingly successful palate repair and circumcision.
We scored two Cincinnati Childrens hospital mugs
I haven't made anyone cry yet.

Things that have gone wrong:
I was reassured Spencer's blenderized diet could be accommidated. I literally just ordered up from room service 14 servings of blenderized food. They weren't even sure if they had rice milk.
Nurse in the PACU called up to the floor and I overheard her tell many errors which I had to correct. One of which was telling the floor that "We feed him purreed foods at home but we wanted to feed him Elecare during his stay."
They put an IV in his fucking foot. This was after we made them move all the hospital bracelets to his arm because his club foot bar goes on....you wouldn't guess it...his feet. I'm not dealing with sticking the kid again so hopefully his foot doesn't relapse over night.
His meds weren't put in the computer after we were asked about them four or five times.
Surgery ran an hour late.

At least it's over with and he's alive. I guess in the end it's all that matters. He has cool little arm sleeves that make it so where his elbows won't bend. We're going to have one pissed baby. I'm sure he'll figure out how to get out of them by morning.

Hide and Seek winner!

Spencer's rogue testicles have been found. They are pretty far off from where they should be, so I'm thinking we'll be adding another surgery to next Friday's two.
There was something that kind of concerned me. Something crazy was going on with Spencer's small intestine. The doctor came in and said it looked fine, asked if he has been sick (he has), and said it's nothing to be concerned about. I asked if we needed to address it with his other docs and she said no.
I really don't like the idea of not knowing what all is going on next Friday during surgery. Pulmonology is on the board for his surgery but I don't know why. The only thing I can think of is that it's either a scope or precautionary because of how the cleft repair may change his breathing patterns. We see him on Tuesday, so I'll ask then, but it still annoys me. I'm the first person who should know what's going on. I'm sure I'll get a call from endocrine or urology tomorrow or Monday to discuss bringing the boys down.

The TMI post, or what I'd like to call, the penis post

We spent two hours at endocrine today...his thyroid levels were the best they have ever been. His free T4 levels were actually normal for a change, which he has always baffled the endocrinologist because of it's weird levels. We spent 2 hours at endo because of little man's penis...so the story begins.

I've been pretty hesitant about discussing his manly parts. But alas, it all started before he was born and at our first prenatal appointment. The nurse asked us if the baby was a boy if we would want him circumcised. I told Jimmy it was his decision and he was fairly adamant (read blantly adamant) about having it done.
Fast forward about 8 months. Spencer is born, and on the day he would have been cut was when he went to Childrens. Then the doctors couldn't decide if Spencer was big enough to do the circ. The term micro-penis was thrown around, which scared the hell out of me. Google is brutal. Anyhow, then the urologist did a consult at my insistance and said he was fine and just had what we like to refer to "his pad-o-fat", which hides part of the penis. After a month of relentless debate, it was decided it would be done by the surgeon when he went in for his gtube insertion.
The surgeon comes to talk to us after the surgery and told us that his urethra appeared slightly off center, and they don't do the circumcision just in case the urologist needs the foreskin in reconstruction. Urologist tells us he has a level one hypospadius and he will need what he actually referred to as a fancy circumcision.
Keep in mind, his circumcision was brought up more times than I can count. In the mean time, I kept my stance of, "I don't care."
Then Spencer' testicles decided not to drop. After it had been establish that Spencer is 1. genetically a boy and 2. that he creates testosterone, that they have to be in there somewhere. They searched "pad-o-fat" to no avail. The urologist said we might have to do exploratory surgery at some point and then bring them down. What we discussed at endocrine today was whether we needed to give Spencer a shot of testosterone, which fancy endocrine doctor (the resident) says, "will confirm again he has testicles and might make his penis grow even larger, but it's already an impressive size," or do an ultrasound. They tried to call urology to see what doc wanted to do, but he was in surgery...so we might have to go back to endocrine for shots tomorrow or the next day. In the meantime, we had to go do an ultra sound of his pelvis tomorrow. That should be a fun conversation with the tech.