Friday, August 12, 2011

It's over

Spencer's cleft palate repair was today. There was a minor complication, but the plastic surgeon was able to get the palate closed beautifully. The hypospadius repair didn't happen and now Spencer's penis is the center of discussion again. They are worried size again, but "he's a little guy." I was also told by his urologist that "We we're going to be seeing a lot of each other." Ughhh. At least the kid got fucking circumcised....finally! It really feels like once we see an end to all the surgery, more and more get added onto it. Just to get his testes descended it's going to take two separate surgeries. Plus we have his ptosis repair (one now, one at age 7), possibly heart surgery, more ear tubes, eye tube removal, and possible tear duct reconstrucion.

Things that have gone right today:
Spencer had a seemingly successful palate repair and circumcision.
We scored two Cincinnati Childrens hospital mugs
I haven't made anyone cry yet.

Things that have gone wrong:
I was reassured Spencer's blenderized diet could be accommidated. I literally just ordered up from room service 14 servings of blenderized food. They weren't even sure if they had rice milk.
Nurse in the PACU called up to the floor and I overheard her tell many errors which I had to correct. One of which was telling the floor that "We feed him purreed foods at home but we wanted to feed him Elecare during his stay."
They put an IV in his fucking foot. This was after we made them move all the hospital bracelets to his arm because his club foot bar goes on....you wouldn't guess it...his feet. I'm not dealing with sticking the kid again so hopefully his foot doesn't relapse over night.
His meds weren't put in the computer after we were asked about them four or five times.
Surgery ran an hour late.

At least it's over with and he's alive. I guess in the end it's all that matters. He has cool little arm sleeves that make it so where his elbows won't bend. We're going to have one pissed baby. I'm sure he'll figure out how to get out of them by morning.

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