On Tuesday Spencer is getting an MLMB done and a supraglottoplasty to relieve some of the swelling on his laraynx. If this works, he won't have to have a jaw distraction and he will hopefully get to come home. We're not too optimistic, because often these procedures have to be repeated and don't always solve the problem- but we are hopeful. The "surgery" is being done on his 2 month birthday, which sucks, but at least it's not as invasive as his g-tube placement.
Otherwise, he's doing pretty good. They finally switched his formula to soy, and he just got bumped up to 85ml a feed. He is a tad over nine pounds now. He is on 22 calorie formula instead of the normal of 20, so he'll get bigger. His breathing is getting better and he seems to be resting better too.
We are waiting on an orth consult to figure out what the plan is about his feet and hands.
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