Spencer's test results came back yesterday. He has no commonly known genetic ailments. This doesn't mean he doesn't have one, but it could also mean he doesn't have anything. We won't know for sure until he's older.
We have to decide how we'll feed him after he gets home, as a backup for his bottle feedings. He's still having trouble getting the hang of the bottle thing, so we either have to have a temporary tube in his nose, or a more permanent one in his stomach. We're going to talk to the speech pathologist before we make up our mind.
They are going to do his feet outpatient. We're not exactly sure what they are planning, but it seems like Ponseti. I'm sure they will do his first casts before he gets to come home.
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I started this blog when my son was diagnosed with a clubbed foot while I was pregnant. His clubbed foot is one of dozens of diagnoses now! Shortly after birth, he was diagnosed with Pierre Robin Sequence. Spencer was diagnosed with Say Barber Biesecker (Ohdo) Syndrome in April of 2012. We recently found out he likely also has Genitopatellar Syndrome. In spite of all his medical issues, he's a happy and fairly healthy kid who is always keeping us on our toes.
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