Waiting Game

Spencer James was born on the 18th at 3:01 om. I had an elective c-section because chances were that's how I was going to have to have him anyway. It was pretty scary, but all worth it once it was over. I remember panicking thinking he could just stay inside me forever.

Our first night together was perfect. He was having trouble eating, but I figured he would soon get the hang of it. Then the next morning the peds doctor took a look at him and sent him to Children's Hospital. I had to stay at the hospital. Handing him to the nurse was the hardest thing I have ever done. My husband rode over with him in the ambulance.

Spencer has clubbed feet, a cleft palate, some muscular thing with his hands, and a slight but completely normal heart murmur. He is getting some genetic testing done, and the results should be in within another week. As parents we have no idea if he's MR or not, or what he has, which is incredibly frustrating and heart breaking. Leaving him at the hospital every night is really hard. We can't wait to bring him home.

Today they fitted his hands with some braces. He hyper extends his hands, so they are trying to get them to straighten them out a bit. Tomorrow we'll learn what we're going to do about his feet. One foot is clubbed, and something else is going on with the other. We're working with a speech pathologist on his feeding, and he is using a bottle with a special nipple on it. He's starting to get the hang of it. He doesn't open his eyes a whole lot yet, but he's starting to a little more each day.