So we went to our cardio appointment. We were told let's wait and see. They are optimistic that it might close on it's own, or at least enough to not give him problems. If it hasn't closed by the time he is 5 or 6, they will go in and do it. We don't go back to cardio for a year!
I called his fancy eye doctor because Spencer has had gunky eye for a few days now. Hopefully it clears up before the appointment, but we can't be too careful since he still has tubes in his tear ducts. I hope it's just a cold, otherwise he might have to have another crazy eye surgery.
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I started this blog when my son was diagnosed with a clubbed foot while I was pregnant. His clubbed foot is one of dozens of diagnoses now! Shortly after birth, he was diagnosed with Pierre Robin Sequence. Spencer was diagnosed with Say Barber Biesecker (Ohdo) Syndrome in April of 2012. We recently found out he likely also has Genitopatellar Syndrome. In spite of all his medical issues, he's a happy and fairly healthy kid who is always keeping us on our toes.
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