Wednesday, June 6, 2012

Xmen.

So Spencer had surgeries number 21,22, and 23 this week. Keep in mind he's only been alive for 26 months. He had his other testicle lowered, his superior adendoids removed and new PE tubes placed. His new ear tubes are a little more permanent than his old ones, which we are thinking he'll need long into his childhood since he is a Pierre Robin kid. The surgery went fine, although Dr Alam, his urologist, took longer than he should of and that worried us. Spencer has some screwy anatomy. He was only able to bring his testicle to right above his penis, like the other. He says he can finish the job when he's older. He said this testicle, like the other, was in bad shape but is working, although it's likely that Spencer cannot have children. We also discussed the results of his bladder study. Spencer' bladder is the wrong shape and borderlines on neurogenic. While this means we'll likely have to go searching for the tethered cord, it also means that we will hopefully avoid cathing him for the long haul. Of course he'll still have to see urology every six months and will have other surgeries in that area in the future, but for right now we're done on that area of the body which is a relief. Urology also put a new idea in to our heads. Kids with cranio facial anamolies typically don't have anything wrong with their spine. He also says it's not an Ohdo thing either. So as of now, his bladder abnormalities and spinal stuff is unexplained. While kids with Ohdo do have skeletal malformations, it's typically with limbs. I'll talk to Hopkin about it next time we seem him. He'll know more or try to figure out if Spencer has another genetic condition to add to the mix. We also followed up with dentistry the day before surgery. I was super paranoid about his teeth and the buildup that was forming on them. The dentist told us the buildup was actually a protective coating that kids with feeding tubes often have. So basically Spencer has super mutant strength teeth, which further confirms our belief that Spencer is a future member of the Xmen.

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