Wednesday, May 30, 2012

Can we just have a little normal?

So the urodynamics testing today sucked. Bad. It was nearly as bad as his EMG and I was solo. Round 1: The nurses drained his bladder and drained 120 ccs of fluid. They then filled his bladder with saline to see how long it would take him to pee. Meanwhile, he is screaming is head off. It didn't hurt, just uncomfortable. They got it up to 240ccs before they gave up. They said he had high pressures in his bladder. He pooped at the very end...just enough to keep them on their toes. Round 2: Ultra sound of his bladder and kidneys. This went quite well. We end up with the same radiology tech the once every few months we go...I think we're on first name basis now. She remembers Spencer because he is the "short bowel intussesption kid"....he had a intussesption resolve itself on ultrasound once...pretty rare. Our peds thought it was the greatest thing ever...anyhow, Spencer mellowed out and watched some Diego. At least it wasn't Sesame Street. Round 3: This time we were in the xray room. His bladder was filled up with contrast and another catheter was inserted. They filled him up to capacity, 250ccs (super bladder!), and he started to pee in spurts. Then they broke out the warm water. After not doing anything for a few minutes, he caught them off guard and peed like mad all over the side of the xray machine. The doctor and nurse doing the test must really love their jobs....anyhow, his bladder shape is good, and he is voiding all the way, but they suspect he is borderline neurogenic bladder. At this point, we don't know what this means for Spencer. All signs point to him having the tethered spinal cord. I suspect we'll be going into surgery for it...and soon. I'm waiting for urology to get the results and we'll go from there. I'm also paranoid about Spencer's teeth. He has some buildup on a few teeth which is fairly new. Kids with Ohdo have a lot of teeth problems. Hopefully I can get him back in the dentist and soon, so they can assure me I'm just paranoid.

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