Topic - Understanding Life with a Feeding Tube - Explaining a day in the life/daily routine of tube feeding and all it requires
We feed Spencer a blended diet. Every night a make him a blend usually consisting of around 5 oz of meat, 2 c soy milk, 1 6 oz container of soy yogurt, 2 oz almonds, 1 avocado, 2 tbsp olive oil, 1 c fruit, 1.5 c of veggies and whatever else I need to make up 1700 calories a day.
Spencer gets his first feed at 9am. I hand bolus his feeds in, meaning I take a 60ml syringe and attach his feeding tube extension in and push the food in his stomach. I then give him at least an ounce of water after. He eats again at noon, 3, 6, 9, and midnight.
Spence does eat orally, so we give him snacks throughout the day.
Compared to most parents our tube feeding schedule is pretty simple. Aside from wiping off his tubie everyday or cleaning it during a bath, it doesn't require a lot of care. What really makes our life complicated are all the non-tubie related stuff we do everyday!
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