Topic - What do you want clinicians to know about the day-to-day life with a feeding tube?
That I know what I'm doing. I'm more educated on feeding tubes than our surgery doctor who manages our g-tube care (she even says as much). The only time I'm going to call the doc is when there is a clog I can't get undone or we need to go up in size. So when I do call, it's important. I'm also here as a lifeline for other parents who are knew at the whole tubie thing and have no clue what they are doing.
I also think it should be mandatory for all hospitals to teach parents how to change a gtube before they leave the hospital after surgery. Our surgery doc was AMAZED that we change his tube ourselves.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment