Spencer is coming home tomorrow! He showed improvement on his sleep study, and they have turned his oxygen down a bit. He will be coming home on a 1/4 liter at 100%. He is still on 24 cal formula, but they might stop giving him protein with it. He has a ton of appointments in the next month, but at least he's coming home.
The best feeling was walking out of the RCNIC and realizing it would be the last time we would walk out of there without him.
We are last minute finishing everything. His dad is currently struggling with his playpen, and I'm going to go buy some bottles. He uses the Habermann bottles (at 30 bucks a pop, luckily we scored some), but we are going to use regular bottles as easy storage. I am taking the next few days off work to stay home and bond.
We won't be doing much staying at home. We have a WIC appointment on Wed and a bazillion other appointments over the next month.
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I started this blog when my son was diagnosed with a clubbed foot while I was pregnant. His clubbed foot is one of dozens of diagnoses now! Shortly after birth, he was diagnosed with Pierre Robin Sequence. Spencer was diagnosed with Say Barber Biesecker (Ohdo) Syndrome in April of 2012. We recently found out he likely also has Genitopatellar Syndrome. In spite of all his medical issues, he's a happy and fairly healthy kid who is always keeping us on our toes.
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