Saturday, June 15, 2013

Nervous.

Tomorrow we head back to Cincinnati for Spencer's Urodynamics study.  I'm a nervous wreck about all of it.  It's a hard test for anyone to go through, but even more so for a child.  Essentially they are going to fill his bladder with saline to measure the pressure inside.  Then after that hot mess he has to have a renal ultrasound.  Then they will try to get him to pee on xray.  It's a fairly miserable experience for all involved.  Jimmy is going to take the ultrasound, since I absolutely hate doing them.  I hate doing all of it, but I hate having to position him and try to get him to relax.  I'll take the other two tests.  Luckily, we won't have to wait long for the results because his urology appointment is at 2 on the same day.  Worst case scenario he has kidney damage and we have to start cathing him.   

Dr. Hopkin gave us some hope.  Spencer's bladder issues were caused by some nerve damage to his spinal cord.  There is a small chance that some of the cells may regenerate and could help bladder function.  I'm going to pick Dr. Alam's (his urologists) brain while we are in clinic about this.  The last thing I want to do is start cathing Spencer.  Usually once you start, you always have to do it.  He is 3 and would have to have this done for the rest of his life.  His prognosis is good, so cathing would be something he would still have to do as an adult. 

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