Just realized I didn't update this thing after Spencer was put back in the hospital. After the initial three days we were home for a day and went back for three more. He's doing great now although took a while to get back to normal.
While he was in the hospital his gait trainer came. Naturally, he's terrified of it. We're working on it though. We're pretty excited to see him use it. We have to put him in it for ten minutes a day, which we call Doodle Torture.
His birthday went really well. A friend from work made him some gluten free sesame street cupcakes and Elmo cakes. They were delicious. He got tons of presents, including a toy we had banned everyone from buying him. It's this really annoying puppy thing that sings. Naturally he loves it.
Spencer's last day with his awesome speech therapist was on Thurs. She decided to take a job with less hours because she's expecting. While we are super excited for her, we'll miss her. Spencer starts next week with Kim, who is hardcore. I love it. The problem with his old therapist was that she was a sucker...Spencer had her wrapped around his finger. Kim is a seasoned vet and knows all the tricks:)
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I started this blog when my son was diagnosed with a clubbed foot while I was pregnant. His clubbed foot is one of dozens of diagnoses now! Shortly after birth, he was diagnosed with Pierre Robin Sequence. Spencer was diagnosed with Say Barber Biesecker (Ohdo) Syndrome in April of 2012. We recently found out he likely also has Genitopatellar Syndrome. In spite of all his medical issues, he's a happy and fairly healthy kid who is always keeping us on our toes.
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